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Eating (Gluten Free) Crow
It seems to be the Del de Dao. A well-meaning person will tell me about how their SisterFriendFatherInLawVeternarian tried [thing] and saw miraculous results. I ask my doctors about [thing], and I get...
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SSDI: Everyone’s a Little Bit Disabled
“You’re a little bit racist, well, you’re a little bit too! I guess we’re both a little bit racist – admitting it is not an easy thing to do.” -Avenue Q For those of you who aren’t familiar with Avenue...
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It’s a Pain, Being In Pain
This is likely going to be a bit ranty at times, so there’s your warning. If you’ve been reading this blog for a while, you know that one of the biggest things I struggle with in my disability is that...
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This is Not The Surgery I Ordered, Sir
I got a gentle nudge that I hadn’t written anything about my surgery in specific, and how the recovery is going. I can’t promise I’ll share all the horrid details, but I hope you’ll feel like you know...
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A “Good” Test Result
Today I finally got one of the tests that Neurologist number 5 prescribed back in November. (Things have been kinda hectic, medically, since then, so I put them on the back burner.) It was a EMG,...
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You Can’t Get There From Here
If you follow me on social media (primarily Facebook), you’ve gotten little updates on the current situation, but I’m going to tell the whole story -albeit in short form, or as short as I can make it-...
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Looking Towards Surgery: The Plan
I am happily writing this post from the comfort of my bedroom at The Squat. I was discharged today after my “two to three” day stay that was actually six. But a lot of good was done in those six days;...
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Things are Looking UP!
I get comments sometimes that this blog has turned into one gripe after another about how negative my life is; a “bitch fest”, “too much focus on the negative, and not enough positive thinking”, etc....
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What about it?
“What about Dying for a Diagnosis?” Winter asks, in that way good friends, or sometimes shamans, ask someone about something they’ve been overlooking for longer than they should have. “I know, I know…I...
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Maryland House Bill 1453
You may have read some of this on my Facebook page, but it’s so vitally important to me I’ve decided to develop an entire blog post about this. I’ll start by providing you the link to the NORML page...
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The Unexpected Blessings of Pain Management Medications
It’s easy, sometimes, to get negative when you suffer from chronic pain. I mean, I’m almost afraid to open with that statement, lest my reader go “duh” and skip the rest of the post. I’ve written a lot...
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The Three Sided Coin
If you just want the short version, you can skim/scroll down to the “Here is the TL:DR Bookmark”, and start there. You’re welcome. As you all know, I had a panniculectomy in late December, from which I...
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The Jig Is Up
This is not the blog post I’m supposed to be writing. You may have noticed that I haven’t been as active online as usual – less blog post, no inane facebook replies, not even a “like” on a picture on...
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Square Pegs
This is going to be difficult to write. I almost never use trigger headings (warning people about potential upsetting topics), but this post deserves one: Trigger Warning: discussion of sexual assault,...
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I’m The Fridge
…and the diagnoses are the spaghetti. Still at Johns Hopkins, and it looks like this trip is going to end very unsatisfactory. After being absolutely certain that the problem lied in my kidneys, they...
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Ten Hard Lessons I’ve Learned About Being Chronically Ill
I’ve been struggling with chronic pain and illness for over six years now. In that time, I’ve come to some difficult situations and choices, and for the most part had no source material to turn to....
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A Pain Contract Has Two Sides: A Letter to My Primary Care Physician
Dear (My Primary Care Physician):I don’t know if you are aware of the struggles I had this week with your office, so I will give you a short summary before I make my point.My Oxycontin script ran out...
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